I am so incredibly fortunate to have found an amazing team of medical professionals to help me on this journey.

When I’m trying to tackle a problem, I tackle it from all angles. That’s why, when I was first diagnosed, I reached out to get a wide range of perspectives to help me through.

First, I found Dr. Jonathan Bayuk. He was the keynote speaker at the Mast Cell Northeast meeting that I attended in Oct. 2018.

Listening to Dr. Bayuk speak was the first time I really learned that mast cell patients could actually get better.

At that same meeting, I also met nurse practitioner Erin Kolb. Erin was at that same meeting to speak about her own experience using the Dynamic Neural Retraining System to heal from MCAS. I was totally inspired by hearing her story, which led me to try DNRS as well. Erin now works at the same practice as Dr. Bayuk, where she focuses on mast cell patients.

And then somehow, about a month after I attended this support group, I got the phone call I’d been praying for: Dr. Maria Castells had an opening on her waiting list. As the head of the Mastocytosis Center at Brigham and Women’s Hospital, she is really hard to see, and the wait to see her is normally about a year.

However, when I first called her office I begged them to call me if she had an opening- any time, any day– and I would drop everything and come. Turns out my approach paid off, because I actually got that call much sooner than I thought!

I totally love my treatment team, and feel that each practitioner brings something slightly different to the table.

I feel so fortunate that, somehow, I was able to see more than one world-class mast cell practitioner.

That’s a big part of why I’m so dedicated to sharing my story now. I know that not everyone has access to the resources I’ve had access to.

So my goal in running this site is to pay it forward and share what I’ve learned.