Finding this video made a world of difference to me. I found it at a point when I wasn’t sure if anyone ever really got better from MCAS. Thank you so much, Savannah, for posting this and sharing your journey. I wanted to jot down a few notes about what she said because writing is, personally, how I process and internalize things. So I wanted to write this out, … Continue reading Heyo it’s Mayo– MCAS Series #4- 20 Steps to Healing
This is an absolutely amazing story from a man who became increasingly debilitated over the course of years, following infection with a viral illness. Jeff went to hell and back, getting progressively more ill over the years. He had Myalgic Encephalomyelitis (ME), POTS, MCAS, dysautonomia, as well as a host of other symptoms. Jeff tells his story on his site, MEchanical Basis. Eventually he discovered … Continue reading MEchanical Basis/Jeff’s Story
This article explains a bit about their work at the hospital in general. An interesting tidbit: “Dr. Hamilton is exploring novel treatments for mast cell patients with persistent or refractory symptoms. The primary treatment for the symptoms of mast cell activation remains the blockade of the mast cell mediators with antihistamines, mast cell stabilizers, and prostaglandin and leukotriene inhibitors The regimen is maximized to therapeutic … Continue reading Case study from Brigham and Women’s: successful treatment of female patient with MCAS/GI symptoms
Winning the Lottery: “Novel” Treatments Return Severely Ill POTS Patient to Near Health After 10 IVIG treatments, a tilt table test found that her POTS was completely gone. She needs to stay on the IVIG: without an infusion at least every five weeks, she starts to decline. The doctors aren’t done with her yet. At the time of the publication, they stated that they plan … Continue reading Case study: woman who suffered from MCAS, POTS, and SIBO for years finally found right medications
Mast Cell Healing 