Hey everyone, I shared my story recently in an online support group, and someone asked what my advice is to start getting an MCAS diagnosis. In recent posts, I’ve told the story of how I got my diagnosis, despite the fact that I didn’t technically meet all of the official diagnostic criteria. Here’s my advice for others beginning to chart a course through the medical … Continue reading How to get an MCAS diagnosis
I belong to a few different mast-cell related support groups, which have been super helpful to me along the way. From reading posts there, it seems as though it’s far too common for people to end up in a scenario where they have symptoms of mast cell disease, but aren’t sure whether it’s mast cell activation syndrome, or another form of mast cell disorder such … Continue reading The test that ruled out mastocytosis
I was very lucky to receive a diagnosis of mast cell activation syndrome from my first doctor, Dr. R., because technically, I do not fit all of the criteria for an official diagnosis. The official criteria to receive a diagnosis actually include the following, as discussed in this article: Symptoms of mast cell activation: “patients with a presumptive diagnosis of “MCAS” must have two or more … Continue reading Why I got a diagnosis, even though I don’t fit all of criteria for mast cell activation
When I first developed symptoms of mast cell activation in the fall of 2018, I had no idea what was happening to me. I was already seeing an allergist for my environmental allergies at an outpatient practice here in Massachusetts. When my mast cell symptoms began, I started to experience some small reactions to food. My doctor ran blood tests to check for allergies to … Continue reading How I got diagnosed
Mast Cell Healing 