New adventures

Looking back three years ago when I first developed mast cell issues… I hardly could’ve dreamed I’d get the point I’m at now. I honestly don’t think about my mast cell issues that much, on a day to day basis. I’ve reduced my medication by a full 90% I exercise regularly I drink coffee (an important part of my life lol) I’ve dramatically expanded my … Continue reading New adventures

Dr. Castells on Sodium Cromolyn (Gastrocrom)

In this talk, Dr. Castells describes how the recommended therapeutic dose is 200 mg 4 times a day.  However, the drug causes so many side effects (in the intestines is what she mentions) so they start with 100 mg once a day, and increase over the course of 8 weeks. Once they get up to the therapeutic level, there is a “profound inhibition of mast … Continue reading Dr. Castells on Sodium Cromolyn (Gastrocrom)

Dr. Castells interview with Yasmina, Part 2: Stress and Mast Cells

Yasmina: How does stress, or our ability to successfully deal with it, impact our prognosis, or the intensity of symptoms we experience? Essentially, what’s our role in this this condition – are we really helpless bystanders at the mercy of our mast cells? Dr Castells: “I think really when the patient realises that, and in having a positive attitude about the disease, the impact is … Continue reading Dr. Castells interview with Yasmina, Part 2: Stress and Mast Cells

Dr. Castells interview with Yasmina, Part 1 (“Lifestyle Changes DO Work”).

“My recipe, not as a physician, but as someone who has followed patients with mastocytosis over about 20 something years, and seeing it’s kind of evidence based, not published, but evidence based, the patients in which I have been most successful in treating are patients who make changes in exercise and diet, and need a few medications here and there. They’ll need protection with an … Continue reading Dr. Castells interview with Yasmina, Part 1 (“Lifestyle Changes DO Work”).