Dr. Castells, Uncategorized

Dr. Castells interview with Yasmina, Part 1 (“Lifestyle Changes DO Work”).

“My recipe, not as a physician, but as someone who has followed patients with mastocytosis over about 20 something years, and seeing it’s kind of evidence based, not published, but evidence based, the patients in which I have been most successful in treating are patients who make changes in exercise and diet, and need a few medications here and there. They’ll need protection with an … Continue reading Dr. Castells interview with Yasmina, Part 1 (“Lifestyle Changes DO Work”).

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Dr. Anne Maitland, Research

Dr. Anne Maitland: Living with Mast Cell Activation Syndrome

I really love Dr. Anne Maitland’s talks.  The first time I watched this lecture marked the very first time I felt hopeful about anything at all. Some notes/quotes: “The mast cell has come to the forefront (of research) in the past 10 years… which means the rest of the medical community will get it in about 10 years.” “If your mast cells are improperly mediated, … Continue reading Dr. Anne Maitland: Living with Mast Cell Activation Syndrome

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Articles, Case Studies

Case study: woman who suffered from MCAS, POTS, and SIBO for years finally found right medications

Winning the Lottery: “Novel” Treatments Return Severely Ill POTS Patient to Near Health After 10 IVIG treatments, a tilt table test found that her POTS was completely gone.  She needs to stay on the IVIG: without an infusion at least every five weeks, she starts to decline. The doctors aren’t done with her yet.  At the time of the publication, they stated that they plan … Continue reading Case study: woman who suffered from MCAS, POTS, and SIBO for years finally found right medications

Unknown's avatarChristy Collins1 Comment
Home Modifications, Laundry

3 Essential Laundry Tips for Allergy Sufferers

Hi everyone!  Remember me? I haven’t worked on this blog as much recently, because my allergies have gotten way better due to the IQAir air purifier I bought two months ago (more on that later!).  That thing is incredible. However, there are aspects of daily living I still need to be conscious of… and one of those is the care and keeping of the fabrics in my life! … Continue reading 3 Essential Laundry Tips for Allergy Sufferers

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Medications

A slight improvement (thank you, Nasacort!).

Here’s another example of why I always tell people to keep a journal. I know, in the abstract, that the nasal corticosteroid sprays (like Flonase and Nasacort) have to be used every day in order to be effective. My allergy doctor told me this. But somehow I always seem to forget. Nasacort helps me a lot (better than Flonase) but when I’m doing well, I … Continue reading A slight improvement (thank you, Nasacort!).

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Air Purifiers

An overview on buying air purifiers

Don’t bother buying one without a HEPA filter.  Those that say “HEPA-type” aren’t good enough– it has to actually say HEPA. The air purifiers with an “ionizing function” are probably not necessary– they can produce ozone, which is a possible lung irritant (according to Consumer Reports). Check the square footing of the area you wish to clear!  I was a little bit sloppy about this when … Continue reading An overview on buying air purifiers

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